by Tammy | Apr 23, 2023 | 4 - Episodes come back
We had just spent the weekend on Vancouver Island. We were on teh late ferry home.
I had been feeling nauseous for the past hour. I went to get tea. Then walked Shadow along the upper car deck on the ferry. We did 1.5 laps and I started getting tired. I made my way back to the car. I went to open the door and it took several tries for me to get enough strength to open the door. Tavis saw me struggling and opened it from the inside and swung it open. I barely made it inside before I lost all my energy. My heart rate was 87 and went down to 67. My eyes were tearing and nose was running.
Yesterday Larissa was telling me about Meniere’s disease. I should look into that.
by Tammy | Jan 12, 2023 | 4 - Episodes come back
I spent the evening sitting on the couch with my ipad, cleaning up my photo albums. I got up to go to bed and met Addison in the hallway. I was showing him some photos when I suddenly got dizzy and felt sick to my stomach. I could feel my skin getting hot.
I went into the bedroom and laid down on my bed. The dizziness went away but I had an episode where I couldn’t move or say anything. I felt completely drained. When concentrating, I was able to wiggle my toes after about 30 seconds. Less than a minute later it passed. My energy returned and I had no nausea or dizziness. I felt as though nothing happened. I went downstairs and finished showing Addison the photos.
This was the first time that I had dizziness and nausea.
by Tammy | May 14, 2015 | 2 - Hospital
At 10:00am I finally received word that my LP was scheduled for 11:30am. At 10:30am I had another episode. The Porter came to get me at 11:15 and I was transported downstairs. There was a bit of a wait but I was brought in at 11:55. The “5 minute procedure” ended up taking almost an hour. Even under the imagery it took 2 tries. I had an episode during the procedure. The first try they hit a nerve which shot my left leg out and was quite painful. The second attempt was a success and it took less than 10 minutes to extract the fluid. I was back up in my bed by 1:00pm with instructions to stay laying down for 1 hour.
At 2:00pm I got the OK to leave the hospital on a day pass and attend the kids’ student led conferences. My husband came to pick me up at 3:00 and we surprised the kids 🙂 I had 3 episodes during the 2 hours I was at the school. One time I went down in the middle of the hallway on our way to the computer lab. I think I pushed myself too hard but it was great to see the kids and all the work they have done this year. Then we went home for a quick dinner.
At 6:00pm we went back to the hospital. My bed had been moved out into the hall. I was now placed directly across from the nurse’s station.
That night I played Candy Crush while laying on my stomach in my bed. Then I moved to my back to sleep. I must have pinched something because I immediately got a sharp pain in my chest. It felt as though someone was squeezing my lungs and would not let go. It hurt as bad as a contraction that would not end. I was able to get my nurse’s attention and she took my vitals. Everything appeared alright so she held my hand until the pain started to go away. It lasted about 5 minutes. After that I went into another episode of paralysis before finally getting some rest.
by Tammy | May 13, 2015 | 2 - Hospital
Tonight the neurologist got tired of waiting for the LP. He attempted to do it himself. Unfortunately, he just wasn’t able to get the right spot. After 4 failed attempts he decided to stop and wait for the lumbar puncture under fluoroscopy. We hoped it would be done before the end of the week as that was the final test before I could be deemed physically healthy and released from the hospital.
by Tammy | May 11, 2015 | 2 - Hospital
Today I started physiotherapy. I had to walk for 20 minutes around the ward with a wheelchair right behind me to catch me when I fell. At first I needed to use the wheelchair quite a bit but I was slowly able to walk further without falling.
