{"id":83,"date":"2017-10-21T20:55:43","date_gmt":"2017-10-22T03:55:43","guid":{"rendered":"http:\/\/tcraik.com\/wordpress\/calendar-2"},"modified":"2024-04-19T19:04:39","modified_gmt":"2024-04-20T02:04:39","slug":"details","status":"publish","type":"page","link":"https:\/\/tcraik.com\/wordpress\/why\/details\/","title":{"rendered":"What is an Episode?"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_post_title meta=&#8221;off&#8221; featured_image=&#8221;off&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; title_font_size=&#8221;34px&#8221; sticky_enabled=&#8221;0&#8243;][\/et_pb_post_title][et_pb_text ul_position=&#8221;inside&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;||||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>What does it look like?<\/h2>\n<p>Each episode is unique. Although there are similarities, the severity and duration varies. Below are some of the common characteristics:<\/p>\n<ul>\n<li>Sudden onsite of fatigue (usually within minutes)<\/li>\n<li>Severe weakness in body<\/li>\n<li>Inability to move or speak (lasting from 30 seconds to 30 minutes)<\/li>\n<li>A heaviness that takes over my body (like a weighted blanket being put on me)<\/li>\n<li>Ocassionally, dizziness<\/li>\n<li>Ocassionally, nausea<\/li>\n<li>The weakness leaves as quickly as it arrives (similar to lifting a blanket off my body)<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_text ul_position=&#8221;inside&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>What are signs to watch for?<\/h2>\n<p>I usually have time to get myself into a safe place before an episide begins. Below are some of the signs to watch for:<\/p>\n<ul>\n<li>Feeling more tired than normal<\/li>\n<li>A task that is normally easy becomes very difficult (eg. lifting a cup or light object, opening a box, walking up stairs)<\/li>\n<li>I am unable to wiggle my toes<\/li>\n<li>I am unable to move my eyes up<\/li>\n<li>Dizziness or loss of balance<\/li>\n<\/ul>\n<p>[\/et_pb_text][et_pb_text ul_position=&#8221;inside&#8221; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;||||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>How does it affect my daily living?<\/h2>\n<p>It doesn&#8217;t really affect my day to day living. The episodes don&#8217;t usually happen often, and when they do, it is normally retty quick. I still enjoy the same hobbies I did before this condition started. I am very active, and I enjoy walking, hiking, running, paddle boarding, camping, swimming, and even zip lining and rope climbing courses whien I get an opportunity.<\/p>\n<p>It is probably a good idea for me to stay away from solo sky diving, or rock climbing dangerous cliffs wihout a harness&#8230; but I am okay with that!<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<h2>What is Causing the episodes?<\/h2>\n<p>In short, we don&#8217;t know what is or what is causing it. Every test we have done has come back normal. We know it is not a seizure. Test have also rules out several other conditions. I am hoping that the genetic testing will provide answers.<\/p>\n<p>[\/et_pb_text][et_pb_countdown_timer title=&#8221;Genetic testing on August 15th&#8221; date_time=&#8221;2024-08-15 16:31&#8243; _builder_version=&#8221;4.24.3&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_countdown_timer][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>What does it look like? Each episode is unique. Although there are similarities, the severity and duration varies. Below are some of the common characteristics: Sudden onsite of fatigue (usually within minutes) Severe weakness in body Inability to move or speak (lasting from 30 seconds to 30 minutes) A heaviness that takes over my body [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":2,"menu_order":2,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-83","page","type-page","status-publish","hentry"],"acf":[],"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/tcraik.com\/wordpress\/wp-json\/wp\/v2\/pages\/83","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/tcraik.com\/wordpress\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/tcraik.com\/wordpress\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/tcraik.com\/wordpress\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/tcraik.com\/wordpress\/wp-json\/wp\/v2\/comments?post=83"}],"version-history":[{"count":9,"href":"https:\/\/tcraik.com\/wordpress\/wp-json\/wp\/v2\/pages\/83\/revisions"}],"predecessor-version":[{"id":346,"href":"https:\/\/tcraik.com\/wordpress\/wp-json\/wp\/v2\/pages\/83\/revisions\/346"}],"up":[{"embeddable":true,"href":"https:\/\/tcraik.com\/wordpress\/wp-json\/wp\/v2\/pages\/2"}],"wp:attachment":[{"href":"https:\/\/tcraik.com\/wordpress\/wp-json\/wp\/v2\/media?parent=83"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}