Cinco De Mayo +3
This morning the hospitalist came to check on me. He reported that all test results from the hospital have come back normal. He let me know that I would see a psychiatrist and that the only test really left from a medical point is the lumbar puncture to rule out any infections in my body. We stopped recording every episode since the doctors didn’t seem too interested in them.
Later that morning my husband came to visit. While he was in the room a psychiatrist came to see us. She went over my history and looked for any signs of Depression or Stress to report to her team. She said there really wasn’t much that she could tell but another thing they are looking at is Cataplexy which is a sleep related disorder.
After school the kids came to visit briefly on their way to Vancouver Island. It was great to see them. I had an episode while they were at the hospital but by now we had determined that by resting I was able to minimize the number of episodes I was having.
Our neurologist came out to visit after 8:00pm. He told me he wanted to do a lumbar puncture to rule out infection. We were hoping to have the test early next week.
That night I took 1/2 a sleeping pill to help rule out sleep disorders. The next morning I woke up at 6:30, then 7:30, then 9:30. I was extremely tired all morning and which was most likely due to the sleeping pill.
I had a new nurse who helped me get out of bed on my own and she stayed with me for 30 minutes while I waited through the episodes. It was the first time a nurse asked me what I wanted to do and helped me do it. I walked to the bathroom to brush my teeth and clean up. After I sat by the window to try and keep myself upright. I had several episodes but I pushed through.